Jenn Hinkle's son, Ollie, died from a Congenital Heart Defect at 14-months old.

(Jenn Hinkle, Ollie Hinkle Heart Foundation)

'Heart Warriors' Join Fun Run To Help Long-Term Health Of CHD Kids

1 in every 100 children in the U.S. are born with a Congenital Heart Defect – they are called "Heart Warriors."

May 04, 2018 - 12:00 pm

ST. LOUIS (KMOX) - There was no way for Jason Young and Jenn Hinkle to have planned for the news from doctors. 

“Miles, our youngest, had to have open-heart surgery as just four months of age," Young says.

“Our son was born with a congential heart defect and that was the first we learned of CHD," Hinkle says. "He was with us for 18 months but he ultimately passed away."

It has been 8 years since the Hinkle family lost their son, Ollie. Through that pain grew a foundation that has now given $700,000 towards CHD research. And gives direct families going through similar situations.

The Ollie Hinkle Heart Foundation is dedicated to lessening the impact of congenital heart disease through LOVE, awareness, and the advancement of pediatric heart research.

“We show them love in any way we can, we provide financial support, emotional support," Hinkle says. "We’ve even started last year through children’s hospital, a mental health programs for parents whose children are diagnosed with congenital heart disease.”

One of the families that helped the Hinkle's in 2011 after Ollie's birth, was the Young's – who have two children living with CHD's. Jason's wife delievered living necessities to the Hinkle's while they stayed overnights at the hospital.

Now, Jason Young say his focus is on the long-term health for kids like his.

“I want to do something to push the needle for development of new procedures and help this kids live longer and healthier lives," Young says.

Hinkle and Young, along with the Children’s Heart Foundation are hosting the 2018 Love Run 5K and Kids Fun Run on Sunday, May 20. You can join their cause, here.

Hinkle says it's open to anyone, no matter if you or your family has been affected by CHD's or not. Even some of the survivors will be joining the Fun Run. 

"We call them Heart Warriors," Hinkle says.